{"id":1483,"date":"2023-03-08T10:18:30","date_gmt":"2023-03-08T10:18:30","guid":{"rendered":"https:\/\/blogs.gov.scot\/statistics\/?p=1483"},"modified":"2023-03-08T10:18:30","modified_gmt":"2023-03-08T10:18:30","slug":"working-as-a-government-statistician-giuliana-giuliani","status":"publish","type":"post","link":"https:\/\/blogs.gov.scot\/statistics\/2023\/03\/08\/working-as-a-government-statistician-giuliana-giuliani\/","title":{"rendered":"Working as a government statistician &#8211; Giuliana Giuliani"},"content":{"rendered":"<p><strong>This article has been produced as part of a blog series to spotlight the work of analysts and statisticians across government. In this blog, hear from Giuliana Giuliani about her work on the Scottish Cancer Patient Experience survey.<br \/>\n<\/strong><\/p>\n<p><a href=\"https:\/\/blogs.gov.scot\/statistics\/2023\/03\/08\/working-as-a-government-statistician-giuliana-giuliani\/giuliana-giuliani\/\" rel=\"attachment wp-att-1489\"><img decoding=\"async\" class=\"alignright size-thumbnail wp-image-1489 lazyload\" data-src=\"https:\/\/blogs.gov.scot\/statistics\/wp-content\/uploads\/sites\/24\/2023\/03\/Giuliana-Giuliani--150x150.jpg\" alt=\"Giuliana Giuliani Profile Photo\" width=\"150\" height=\"150\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 150px; --smush-placeholder-aspect-ratio: 150\/150;\" \/><\/a><\/p>\n<p><span data-contrast=\"none\">I am an Assistant Statistician in the Health and Social Care division. Since day one, I have been involved in the process of collecting, analysing and publishing data in various areas of health and social care. During the pandemic, I worked on Covid-19 related data, such as hospitalisations, excess deaths and care homes visiting data. I have recently moved to the Health Care and Workforce Analysis team. I\u2019m involved, among other things, in the next round of the <\/span><a href=\"https:\/\/www.gov.scot\/collections\/scottish-cancer-patient-experience-survey\/\"><span data-contrast=\"none\">Scottish Cancer Patient Experience Survey<\/span><\/a><span data-contrast=\"none\">. In this blogpost, I will tell you what this survey is, how we run it, and what we use the data for.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<h3><span data-ccp-props=\"{}\">\u00a0What is the Cancer Patient Experience Survey?<\/span><\/h3>\n<p><span data-contrast=\"none\">The Cancer Patient Experience Survey explores the journey of people who have experienced cancer and have undertaken cancer treatment. It provides an insight into the quality of care they received, and how they perceived it. The survey is run in each of the UK nations. In Scotland, it is jointly funded by the Scottish Government and <\/span><a href=\"https:\/\/www.macmillan.org.uk\/\"><span data-contrast=\"none\">Macmillan Cancer Support<\/span><\/a><span data-contrast=\"none\">, a charity offering cancer information and support in the UK. It is run in partnership with Public Health Scotland (PHS) and involves other stakeholders active in cancer research and care, that bring in various perspectiv<\/span><span data-contrast=\"none\">es<\/span><span data-contrast=\"none\"> and expertise on the topic.<\/span><\/p>\n<p>The survey was run for the first time in 2015, and again in 2018. At each round, the survey is carefully designed and, in order to do so, dialogue is crucial. We spend valuable time consulting with stakeholders on many different issues, for example the questionnaire content and criteria for inclusion. This is important to know what stakeholders want, but also to gain a better understanding of the cancer care system, so that we can then correctly interpret the data.<\/p>\n<p><span data-contrast=\"none\">We are about to send questionnaires to collect data for our 2023 round. The first questionnaire, in 2015, was largely based on the Cancer Patient Experience Survey run in England. Since then, we are continuing to review its content, to ensure the information we get reflects Scotland\u2019s requirements, <\/span><span data-contrast=\"none\">and<\/span><span data-contrast=\"none\"> is relevant for our policy objectives and is accessible to users.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<h3><span data-ccp-props=\"{}\">\u00a0The content of the survey<\/span><\/h3>\n<p><span data-contrast=\"none\">To give you an idea of the questions, in 2018 we asked 66 questions relating to the following main areas: <a href=\"https:\/\/blogs.gov.scot\/statistics\/2023\/03\/08\/working-as-a-government-statistician-giuliana-giuliani\/social-care-experience-survey-programme\/\" rel=\"attachment wp-att-1503\"><img decoding=\"async\" class=\"alignright size-thumbnail wp-image-1503 lazyload\" data-src=\"https:\/\/blogs.gov.scot\/statistics\/wp-content\/uploads\/sites\/24\/2023\/03\/Social-Care-Experience-Survey-Programme-150x150.png\" alt=\"Social Care Experience Survey Programme Logo\" width=\"150\" height=\"150\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 150px; --smush-placeholder-aspect-ratio: 150\/150;\" \/><\/a><\/span><\/p>\n<ul>\n<li><span data-contrast=\"none\">Getting diagnosed; <\/span><\/li>\n<li><span data-contrast=\"none\">Finding out about cancer; <\/span><\/li>\n<li><span data-contrast=\"none\">Deciding the best treatment; <\/span><\/li>\n<li><span data-contrast=\"none\">Operations, radiotherapy and chemotherapy; <\/span><\/li>\n<li><span data-contrast=\"none\">Hospital care; <\/span><\/li>\n<li><span data-contrast=\"none\">Support (from Health and Social Services and from others); <\/span><\/li>\n<li><span data-contrast=\"none\">Overall experience and Personal information (link to the <\/span><a href=\"https:\/\/www.gov.scot\/binaries\/content\/documents\/govscot\/publications\/statistics\/2018\/10\/scottish-cancer-patient-experience-survey-materials\/documents\/2018\/scpes-2018---questionnaire\/scpes-2018---questionnaire\/govscot%3Adocument\/SCPES%2B2018%2B-%2BQuestionnaire.pdf\"><span data-contrast=\"none\">questionnaire here<\/span><\/a><span data-contrast=\"none\">). <\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"none\">The questionnaire (or a link to it) was posted to individuals selected with a specific <\/span><a href=\"https:\/\/www.gov.scot\/binaries\/content\/documents\/govscot\/publications\/statistics\/2018\/10\/scottish-cancer-patient-experience-survey-materials\/documents\/2018\/scpes-2018---sampling-methodology\/scpes-2018---sampling-methodology\/govscot%3Adocument\/SCPES%2B2018%2B-%2BSampling%2BMethodology.pdf\"><span data-contrast=\"none\">sampling methodology<\/span><\/a><span data-contrast=\"none\">. They were people with a recent diagnosis of cancer and a hospital stay associated with their cancer. The results are <\/span><a href=\"https:\/\/www.gov.scot\/binaries\/content\/documents\/govscot\/publications\/statistics\/2018\/10\/scottish-cancer-patient-experience-survey-materials\/documents\/2018\/scpes-2018---introduction-of-weighting-paper\/scpes-2018---introduction-of-weighting-paper\/govscot%3Adocument\/SCPES%2B2018%2B-%2BIntroduction%2Bof%2BWeighting%2BPaper.pdf\"><span data-contrast=\"none\">weighted<\/span><\/a><span data-contrast=\"none\"> to ensure they are representative of the survey population. In 2018, 8,090 people were invited to participate in the survey and a total of 5,001 survey returns were completed, giving an overall response rate of 62 per-cent. Because the survey covers complex information, we also provide contacts to ask for help and support, if they feel they need to.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<h3><span data-ccp-props=\"{}\">\u00a0Conducting analysis<\/span><\/h3>\n<p><span data-contrast=\"none\">Once we have collected all the data from the questionnaires, we run robust analy<\/span><span data-contrast=\"none\">ses<\/span><span data-contrast=\"none\"> using statistical anal<\/span><span data-contrast=\"none\">yses<\/span><span data-contrast=\"none\"> software, such as R. We then produce various outputs, for different users. A national report focuses on national results, and it is intended for policy makers; excel tables provide more detailed data for researchers and other analysts. Public Health Scotland produce an interactive <\/span><a href=\"https:\/\/www.isdscotland.org\/Products-and-Services\/Consultancy\/Surveys\/Scottish-Cancer-Patient-Experience-Survey-2018\/\"><span data-contrast=\"none\">dashboard<\/span><\/a><span data-contrast=\"none\"> that breaks the data down by geographical area and is used by people who want to know the results specific for their region.\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">These are Official and National Statistics, which are produced to high professional standards set out in the <\/span><a href=\"https:\/\/code.statisticsauthority.gov.uk\/\"><span data-contrast=\"none\">Code of Practice for Official Statistics<\/span><\/a><span data-contrast=\"none\">. Although our analyses are predominantly based on quantitative data, we also extrapolate the key-themes provided in the <\/span><a href=\"https:\/\/www.gov.scot\/publications\/scottish-cancer-patient-experience-survey-2018-free-text-analysis\/\"><span data-contrast=\"none\">free-text comments<\/span><\/a><span data-contrast=\"none\"> supplied in the questionnaires (qualitative data). In addition, we perform ad-hoc analyses as required. For example, in the past we explored <\/span><a href=\"https:\/\/www.gov.scot\/publications\/scottish-cancer-patient-experience-survey-2015-16-exploring-differences-cancer\/pages\/2\/\"><span data-contrast=\"none\">differences in patient experiences<\/span><\/a><span data-contrast=\"none\">, examining the relationship between the self-reported experiences of service users and a range of factors, such as individual characteristics, type and development of cancer, and care services available. This provides a valuable insight into inequalities in care. Importantly, we compare the results of the surveys over time, to track changes in the patients\u2019 experiences.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<h3><span data-ccp-props=\"{}\">\u00a0The aim of the survey<\/span><\/h3>\n<p><span data-contrast=\"none\">With regard to the aim of the survey, the Cancer patients\u2019 experience survey is one of the surveys of the <\/span><a href=\"https:\/\/www.gov.scot\/collections\/social-care-analysis-statistics\/#scottishcareexperiencesurveyprogramme\"><span data-contrast=\"none\">Scottish Care Experience Survey Programme<\/span><\/a><span data-contrast=\"none\">, including<\/span> <span data-contrast=\"none\">three more surveys. The data is used by the Scottish Government to assess the performance of our care services against set objectives, as well as to highlight areas for improvement. Our vision is to have care services inspired by the principles of high-quality health care, realistic medicine and person-centred care. With the cancer patient experience survey, information is used to:\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"7\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"none\">Provide a national and local picture of the quality of cancer care services through the eyes of those using them;<\/span><span data-ccp-props=\"{&quot;335559685&quot;:714,&quot;335559738&quot;:120,&quot;335559991&quot;:357}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"7\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"none\">Compare the quality of cancer care services over time and between areas;<\/span><span data-ccp-props=\"{&quot;335559685&quot;:714,&quot;335559738&quot;:120,&quot;335559991&quot;:357}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"7\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"none\">Identify areas of best practice and areas for improvement.<\/span><span data-ccp-props=\"{&quot;335559685&quot;:714,&quot;335559738&quot;:120,&quot;335559991&quot;:357}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-ccp-props=\"{}\">\u00a0<\/span>In the past, survey data provided evidence leading to the discussion and implementation of best practices for cancer care by Government, NHS Health Boards; Charities; Regional Cancer Networks; Cancer Centres and Academics and Researchers.<\/p>\n<p><span data-contrast=\"none\">I am looking forward to analysing the results of the 2023 survey and disseminating them. There will be new stats on health care, and especially more to learn about people.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This article has been produced as part of a blog series to spotlight the work of analysts and statisticians across government. In this blog, hear from Giuliana Giuliani about her work on the Scottish Cancer Patient Experience survey. I am an Assistant Statistician in the Health and Social Care division. Since day one, I have&#8230;<\/p>\n","protected":false},"author":663,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[17,127],"tags":[25,5],"class_list":["post-1483","post","type-post","status-publish","format-standard","hentry","category-health-and-social-care","category-working-in-statistics","tag-scotland","tag-statistics"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Working as a government statistician - Giuliana Giuliani - Statistics<\/title>\n<meta name=\"description\" content=\"This article has been produced as part of a blog series to spotlight the work of analysts and statisticians across government. 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